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3 Aug 2006, 00:30
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#1
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:alpha:
Join Date: May 2002
Location: London, UK
Posts: 7,871
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Worried :( :( :(
Livejournal thread here we go!
I was told I was in CR (Complete Remission - ie: cancer is all gone) about a month ago.
As my form of cancer is extremely rare, they weren't entirely sure what to do as the next step. They could have blasted me with more chemo to reduce the chances of it coming back, but they weren't sure if it'd actually make a difference to the chances. So we agreed it wasn't worth doing (yes, WE agreed - the doctor made me decide what to do ).
Anyway.
So now I have "nothing" to do really (except for a stemcell harvest in the eventuality of it coming back and me needing a stemcell transplant). I just have to sit back and really really hope the cancer doesn't come back.
I've been told there's a 60% chance of it coming back, but this is based on "Mickey Mouse statistics" (the doctor's words) so it could be more or could be less. Noone knows.
This sitting back and waiting/hoping is harder than the chemo in a lot of ways though. At least with the chemo I knew where I stood - "I'm getting rid of cancer!". Now it's like I'm waiting for it to come back
The symptoms of it coming back will be signs of the following:
*My glands going up
*Me losing weight
*Me losing my appetite
*Me being more tired than usual
*Me having a repetitive cough
Now for the last 2-3 weeks I've had a cough and I've been so ****ing scared it's the cancer coming back. If it does come back it won't be straightforward chemo, they'll have to start bringing out the big guns (intensive chemo over a period of days, me being in hospital for weeks).
None of the other symptoms have come up (except maybe my glands, but I don't know what "normal" size is for them so I'm unsure there).
I mentioned it to the doctor and he was like : ohshit : so moved my scan date forward.
So tomorrow I have another PET scan (highly sensitive scan - I think there's only 6 of the scanning machines in the country or something).
I'll be getting the results in a week Wednesday.
I'm so scared. I really really want it to come up negative (ie: no sign of cancer).
I didn't mind people joking about it before, when I had it and I was dealing with it. Now, I'd rather people didn't. I don't want to tempt fate by taking the piss out of it.
I respect "cancer" very much and count myself incredibly lucky for having got rid of it with relative ease. Joking about it was fine to keep me in "high spirits" throughout the treatment (I did it too to stop myself from going into some kind of self-absorbed depression). Now though, I'd rather you guys didn't make jokes about it coming back (bald jokes etc I don't mind - just jokes about it coming back and similar).
Please
__________________
"There is no I in team, but there are two in anal fisting"
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3 Aug 2006, 00:37
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#2
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Join Date: Jan 2002
Posts: 421
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Re: Worried :( :( :(
A very good friend of mine has a 5 year old who's been fighting leukemia for a year now.
Cancer is a bitch. Good luck Tomkat.
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3 Aug 2006, 00:45
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#3
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Caveat Lector
Join Date: Feb 2003
Location: Tucson, Arizona
Posts: 3,038
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Re: Worried :( :( :(
I never much liked the cancer jokes anyways. I am scared of cancer, and I don't even have it (I assume).
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3 Aug 2006, 00:55
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#4
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Ron Burgundy
Join Date: Jul 2004
Location: A glass case of emotion
Posts: 632
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Re: Worried :( :( :(
Thats really shit Good luck with the scan TK, I'm sure you'll be fine. Cough could be anything from lowered immune system from the chemo, or even the after effects of the chemo (still) irritating you.
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[/dribble]
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3 Aug 2006, 01:04
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#5
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Non directed and witty
Join Date: Nov 2001
Location: #ascendancy
Posts: 814
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Re: Worried :( :( :(
Good Luck.
__________________
CATHAAAAAARGH
I've won 4 rounds.
I'm kinda a big deal.
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3 Aug 2006, 02:38
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#6
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Beoyotch
Join Date: Mar 2005
Location: Ontario, Canada
Posts: 361
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Re: Worried :( :( :(
Aye, good luck mate.
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Peekaboo!
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3 Aug 2006, 08:29
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#7
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Next goal wins!
Join Date: Sep 2000
Location: London
Posts: 5,406
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Re: Worried :( :( :(
Good luck with your scan (is it today?) and I hope everything's fine.
No jokes.
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bastard bastard bastard bastard
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3 Aug 2006, 08:34
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#8
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1up on you
Join Date: Mar 2002
Location: Birmingham, UK
Posts: 4,007
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Re: Worried :( :( :(
Well this is sad news, very sad news. Lets hope that the cough has nothing to do with the cancer and you will actually be ok.
Good luck with the scan.
I'm sure we are all thinking for you.
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pig
[ 1u p]
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3 Aug 2006, 08:36
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#9
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Caveat Lector
Join Date: Feb 2003
Location: Tucson, Arizona
Posts: 3,038
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Re: Worried :( :( :(
How long until you know that it wont come back? Or is 60% chance of recurring the rest of your life?
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3 Aug 2006, 08:38
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#10
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Jazz Man
Join Date: Jan 2003
Posts: 1,494
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Re: Worried :( :( :(
You'll be in my thoughts a week wednesday.
Best of luck Tomkat - I hope all goes well for you :-)
__________________
Marv
Ex ROCK HC & PA Team Head of Support.
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3 Aug 2006, 08:49
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#11
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Guy next door
Join Date: Feb 2002
Location: The Netherlands
Posts: 4,745
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Re: Worried :( :( :(
Tom, I really hope everything turns out well for you. Keep your head up.
__________________
..look
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3 Aug 2006, 08:55
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#12
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:alpha:
Join Date: May 2002
Location: London, UK
Posts: 7,871
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Re: Worried :( :( :(
Quote:
Originally Posted by s|k
How long until you know that it wont come back? Or is 60% chance of recurring the rest of your life?
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"60% chance of it coming back in the next 5 years"
But the chances of it coming back get smaller with each year, so after 2 years or so it's much less (don't have the figures).
__________________
"There is no I in team, but there are two in anal fisting"
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3 Aug 2006, 09:02
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#13
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Caveat Lector
Join Date: Feb 2003
Location: Tucson, Arizona
Posts: 3,038
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Re: Worried :( :( :(
Quote:
Originally Posted by Tomkat
"60% chance of it coming back in the next 5 years"
But the chances of it coming back get smaller with each year, so after 2 years or so it's much less (don't have the figures).
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You'll probably outlive me. :P
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3 Aug 2006, 09:07
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#14
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Registered User
Join Date: Dec 2001
Location: Confœderatio Helvetica
Posts: 323
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Re: Worried :( :( :(
Sad to hear
Best of luck, Tomkat.
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3 Aug 2006, 09:42
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#15
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I see you!
Join Date: Sep 2002
Location: In any girl
Posts: 2,825
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Re: Worried :( :( :(
Good luck mate
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3 Aug 2006, 09:51
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#16
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Dum Di Dum Di
Join Date: Sep 2001
Posts: 858
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Re: Worried :( :( :(
Quote:
Originally Posted by Tomkat
"60% chance of it coming back in the next 5 years"
But the chances of it coming back get smaller with each year, so after 2 years or so it's much less (don't have the figures).
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Well, I had a friend with cancer, and he was given the same percentage.
He turned out ok, moved to india and found religion, so clearly you have nothing to worry about!
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3 Aug 2006, 09:54
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#17
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mmm lambs
Join Date: Dec 2000
Location: London
Posts: 1,906
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Re: Worried :( :( :(
Quote:
Originally Posted by pig
Well this is sad news, very sad news. Lets hope that the cough has nothing to do with the cancer and you will actually be ok.
Good luck with the scan.
I'm sure we are all thinking for you.
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__________________
I drink therefore I am
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3 Aug 2006, 09:57
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#18
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Banned
Join Date: May 2001
Location: Further to the right
Posts: 19,441
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Re: Worried :( :( :(
Quote:
Originally Posted by Tomkat
Please
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Sure thing. Sorry if I made that other post last night after you had posted this thread, I only read this just now.
And the best of luck with your scan dear.
__________________
Some might ask what good is life without purpose but I'm anticipating a good lunch.
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3 Aug 2006, 10:35
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#19
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Kwaak
Join Date: Mar 2002
Location: Netherlands
Posts: 296
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Re: Worried :( :( :(
I know more people who've survived cancer than who didn't. Good luck with it Tomkat, eventhough we don't know each other.
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3 Aug 2006, 11:05
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#20
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I dunno...
Join Date: Jun 2003
Location: manchester
Posts: 1,502
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Re: Worried :( :( :(
God bless, mate.
__________________
He shall drink naught but brine, for I'll not show him / Where the quick freshes are.
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3 Aug 2006, 12:01
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#21
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nomen est omen
Join Date: Apr 2002
Location: Bristol, UK
Posts: 1,095
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Re: Worried :( :( :(
We`re rootin` for you.
__________________
Me=Hans_Blix
Views expressed are those of the author and not of any company or organisation I am associated with. Electronic communication can be forged and the integrity of this message is not guaranteed.
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3 Aug 2006, 12:40
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#22
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Registered User
Join Date: Feb 2005
Location: UK
Posts: 601
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Re: Worried :( :( :(
Shame to hear that TK, Good luck mate
__________________
[DLR] [Conspiracy Theory] [1up] [Faceless] [Elysium] [LCH] [NewDawn] [Apprime]
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3 Aug 2006, 13:57
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#23
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Spelling is for pussies
Join Date: Mar 2003
Location: Actually, where the feck am I........?
Posts: 446
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Re: Worried :( :( :(
__________________
If God made me in his image, he's one fat ugly biatch.
I always get the soggy biscuit
Veni Vidi Codi
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3 Aug 2006, 14:28
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#24
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InSomniac
Join Date: Aug 2004
Location: Durham, England
Posts: 1,473
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Re: Worried :( :( :(
take care TK
__________________
Runner up in the InSomnia 'Drunkest HC' competition - Currently on the wagon
Elysium | HR | eXilition | OuZo | ND | InSomnia | DLR
db battlegroup founder and spiritual leader
Sexytime HC of Belgians (#s3xytime)
Not so retired anymore....
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3 Aug 2006, 14:41
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#25
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Miles Teg
Join Date: Nov 2001
Location: Dom City
Posts: 5,192
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Re: Worried :( :( :(
I'm hoping for the best.
__________________
Audentes Fortuna Iuvat
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3 Aug 2006, 14:43
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#26
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Your typical Troll
Join Date: May 2006
Location: New York City
Posts: 414
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Re: Worried :( :( :(
best of luck dude.
I hope you won that one =)
Please post how are you doing and all. Seems you have a community here worried for you
__________________
[Destiny] awaits, ex- [Omen]
Nothing on the top
but the bucket and the mop
And an illustrated book about birds
See alot up there
But dont be scared
who needs action, when you got words....
Quote:
Originally Posted by jbg
reading this line is explicit acceptance of my superiority over you
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3 Aug 2006, 14:43
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#27
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For Crowly <3
Join Date: Aug 2003
Location: Luton, England
Posts: 1,391
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Re: Worried :( :( :(
/me hugs
__________________
[14:53:26] * Keiz`afk has joined #support
[14:53:36] <Keiz`afk> THE SMUDGE CHEERLEADING TEAM HAS ARRIVED
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3 Aug 2006, 15:40
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#28
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:alpha:
Join Date: May 2002
Location: London, UK
Posts: 7,871
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Re: Worried :( :( :(
Quote:
Originally Posted by hyfe
Well, I had a friend with cancer, and he was given the same percentage.
He turned out ok, moved to india and found religion, so clearly you have nothing to worry about!
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I'm not sure if you're trying to make me feel better in this post or not dude
But thanks everyone. Scan done now - just gotta wait for the results now!
__________________
"There is no I in team, but there are two in anal fisting"
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3 Aug 2006, 15:42
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#29
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Banned
Join Date: May 2001
Location: Further to the right
Posts: 19,441
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Re: Worried :( :( :(
When does the result come back? I was all nervous opening this thread because I thought it would collapse the quantum probabilities and I was like "o shit, does that make it my fault then?"
__________________
Some might ask what good is life without purpose but I'm anticipating a good lunch.
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3 Aug 2006, 15:49
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#30
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Lucky
Join Date: Jul 2003
Location: -
Posts: 3,830
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Re: Worried :( :( :(
gl tom.
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3 Aug 2006, 16:08
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#31
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cynic
Join Date: May 2000
Location: Bishop Auckland Co. Durham
Posts: 8,809
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Re: Worried :( :( :(
you will be fine dude
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lazy
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3 Aug 2006, 16:18
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#32
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:alpha:
Join Date: May 2002
Location: London, UK
Posts: 7,871
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Re: Worried :( :( :(
Quote:
Originally Posted by JonnyBGood
When does the result come back? I was all nervous opening this thread because I thought it would collapse the quantum probabilities and I was like "o shit, does that make it my fault then?"
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Wednesday!
__________________
"There is no I in team, but there are two in anal fisting"
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3 Aug 2006, 16:22
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#33
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Dirte
Join Date: Apr 2002
Posts: 5,573
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Re: Worried :( :( :(
Good luck, keep the spirits up.
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3 Aug 2006, 16:24
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#34
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Registered User
Join Date: Jan 2005
Location: London
Posts: 3,347
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Re: Worried :( :( :(
Hope you're well man.
__________________
The 20th century has been characterised by three developments of great political importance. The growth of democracy; the growth of corporate power; and the growth of corporate propaganda as a means of protecting corporate power against democracy.
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3 Aug 2006, 16:28
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#35
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Victim of Marriage
Join Date: Oct 2005
Location: NW Indiana
Posts: 784
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Re: Worried :( :( :(
GL, hope everything's alright.
__________________
You mean there's life outside the internet...oh man I'm screwed.
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3 Aug 2006, 17:32
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#36
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so f*cking zen
Join Date: Jan 2003
Location: Hitting Bottom
Posts: 8,499
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Re: Worried :( :( :(
Best of luck in the "not dying any time soon" stakes dude.
__________________
On a long enough timeline, the survival rate for everyone drops to zero.
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3 Aug 2006, 17:59
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#37
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Raaaaaaaah!
Join Date: Apr 2000
Location: United Kingdom
Posts: 2,296
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Re: Worried :( :( :(
Good luck Thomas
__________________
Hicks
Mercury & Solace
Always [Fury]
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3 Aug 2006, 18:00
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#38
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Registered User
Join Date: Feb 2006
Posts: 1,094
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Re: Worried :( :( :(
I know that taking the concept of mind over matter to extremes can result in crappy spiritualism but i do firmly believe that regardless of circumstance your attitude to a given problem can greatly influence its outcome. Don't be afraid don't meekly accept your fate and be determined to be alive for as long as you want.
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3 Aug 2006, 22:02
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#39
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Made of Twigs
Join Date: Jun 2003
Posts: 5,459
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Re: Worried :( :( :(
Fingers crossed Tom.
Really hope all is ok (obviously), you've been through enough already without anything more.
__________________
If I hadn't seen such riches, I could live with being poor - James
It's hard to be humble when you're as great as I am - Muhammad Ali
So **** y'all, all of y'all; if y'all don't like me, blow me! - Dr. Dre
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3 Aug 2006, 22:15
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#40
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Registered Awesome Person
Join Date: Jul 2002
Posts: 5,676
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Re: Worried :( :( :(
All the best - but anyway, you're not allowed to die, I just met you. People may think I did it or something.
__________________
Finally free!
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4 Aug 2006, 01:48
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#41
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WANNASEEMYNEWCHAINSAW
Join Date: May 2000
Location: Éire
Posts: 2,738
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Re: Worried :( :( :(
Good luck mate, I'm sure everything will work out fine and that you're just being a little paranoid (understandably). For once let's root for paranoia!
__________________
I came, I saw, I shouldn't mix pleasure with carpentry.
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4 Aug 2006, 07:20
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#42
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The Bad Guy
Join Date: Dec 2000
Location: East, East, East London
Posts: 2,107
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Re: Worried :( :( :(
Goodluck Tom.
__________________
I wear my sunglasses at night.
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4 Aug 2006, 07:31
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#43
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Registered User
Join Date: Jan 2005
Posts: 3,174
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Re: Worried :( :( :(
Condolences.
Wait I mean good luck.
__________________
If one person is in delusion, they're called insane.
If many people are in delusion, it's called a religion.
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4 Aug 2006, 09:38
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#44
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BlueTuba
Join Date: Aug 2000
Posts: 6,339
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Re: Worried :( :( :(
best of luck fella
__________________
"Build a man a fire, and he'll be warm for a day. Set a man on fire, and he'll be warm for the rest of his life."
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4 Aug 2006, 15:43
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#45
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Back from timeout.
Join Date: May 2002
Posts: 901
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Re: Worried :( :( :(
I had blood squirted into my eye over the 4th of July weekend from a complete stranger, and I got really flipped out thinking maybe something had been transmitted. So after a week or two I finally got the courage to goto the doctors and get a test, then for the next week till the tests came back i kept flipping out and making it worse in my head. I kept going over all the different scenarios in my mind, what to tell family, friends, how long to live if it was bad. etc. Each one just got worse and worse.
Finally the doctor called and said I was fine, and the blood and piss tests came back negative. And he said that I was in the best shape of my life.
The point is that for the next week you're going to be worried, scared, and nervous. Don't let yourself make it worse for yourself by dwelling on it constantly. Find something to take your mind off of the test results.
Best of luck.
__________________
Quote:
Originally posted by Marilyn Manson
You'll have to prise my penis from my cold, dead hand!
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Quote:
Originally posted by Yahwe
Gay ducks only do it because it impresses their peers.
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4 Aug 2006, 15:55
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#46
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Your typical Troll
Join Date: May 2006
Location: New York City
Posts: 414
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Re: Worried :( :( :(
Quote:
Originally Posted by QazokRouge5
I had blood squirted into my eye over the 4th of July weekend from a complete stranger, and I got really flipped out thinking maybe something had been transmitted. So after a week or two I finally got the courage to goto the doctors and get a test, then for the next week till the tests came back i kept flipping out and making it worse in my head. I kept going over all the different scenarios in my mind, what to tell family, friends, how long to live if it was bad. etc. Each one just got worse and worse.
Finally the doctor called and said I was fine, and the blood and piss tests came back negative. And he said that I was in the best shape of my life.
The point is that for the next week you're going to be worried, scared, and nervous. Don't let yourself make it worse for yourself by dwelling on it constantly. Find something to take your mind off of the test results.
Best of luck.
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whatte hell !?!
What kinda fourth of july parties you go to ! Blood does not just randomly quirts out of strangers !
anyhow, i'd be crapping my pants too untill those results. Scary tbfh
__________________
[Destiny] awaits, ex- [Omen]
Nothing on the top
but the bucket and the mop
And an illustrated book about birds
See alot up there
But dont be scared
who needs action, when you got words....
Quote:
Originally Posted by jbg
reading this line is explicit acceptance of my superiority over you
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4 Aug 2006, 20:05
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#47
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Back from timeout.
Join Date: May 2002
Posts: 901
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Re: Worried :( :( :(
Quote:
Originally Posted by Mighteh
whatte hell !?!
What kinda fourth of july parties you go to ! Blood does not just randomly quirts out of strangers !
anyhow, i'd be crapping my pants too untill those results. Scary tbfh
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They were cutting brisket and ribs and his knife slipped rather badly across his wrist. I'm not entirely sure how it happened, only that blood squirted about 7 feet right into my eye.
__________________
Quote:
Originally posted by Marilyn Manson
You'll have to prise my penis from my cold, dead hand!
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Quote:
Originally posted by Yahwe
Gay ducks only do it because it impresses their peers.
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4 Aug 2006, 23:24
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#48
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USS Oklahoma
Join Date: Jun 2005
Posts: 2,500
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Re: Worried :( :( :(
Quote:
Originally Posted by QazokRouge5
I had sperm squirted into my eye over the 4th of July weekend from a complete stranger
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We are still allowed to make fun of QazokRogue5, I assume?
__________________
Ignorance is curable, stupidity is not.
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4 Aug 2006, 23:30
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#49
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Love's Sweet Exile
Join Date: May 2001
Location: Living on a Stair (Now Sword-less)
Posts: 2,371
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Re: Worried :( :( :(
it's mandatory
Hope all is well Tomkat, I'd hug you if you were nearby :|
__________________
--SYMM--
Ba Ba Ti Ki Di Do
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5 Aug 2006, 02:29
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#50
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Registered User
Join Date: Jun 2005
Location: Finland
Posts: 360
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Re: Worried :( :( :(
As I just said in IRC - Good luck mate.
__________________
R 11 [noob]
R 12 [NoS]
R 13 [Didn't play]
R 14 [VsN] ---> [xVx]
R 15-17 [xVx]
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